DBlog Week: Day 3

Day 3 Topic: Today we’re going to share our most memorable diabetes day. You can take this anywhere…. your or your loved one’s diagnosis, a bad low, a bad high, a big success, any day that you’d like to share.

Most Memorable Diabetes Day….

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Hmmm….I put a lot of thought into this and because there are so, so, so many days & events I could choose from I decided to sum it all up into saying that for me, my most memorable diabetes day would be Everyday!

For as long as I can remember, diabetes has been with me…with me while when I was a child, with me when I started school, with me when I went to diabetic camp, with me when I was in the hospital fighting for my life, with me when I learned to ride a bike, with me when I took tests, with me when I had my first boyfriend, with me when I hung out with friends, with me when I drove for the first time, with me when I went to school dances, with me when my sister became diabetic also, with me when I got my first job, with me when I graduated from high school, with me when I went to college, with me when I was pregnant with my babies, with me when my babies took their first steps, with me when I got my home, with me when my babies first went to school, with me while watching my kids participate in school functions, with me while watching my kids participate in sports, with me when my babies were diagnosed, with me through all of my seizures, with me at the grocery store every time I shop for food, with me every time I eat something, with me every time I get low, with me every time I get high, with me while I work, with me while I sleep, with me while I clean my house, with me while I take vacations, with me when I check my children’s blood sugars through the night, with me when I constantly worry about my children, and with me everyday for the rest of my life! Diabetes is a part of me. Diabetes is a part of my children. Diabetes is a part of my family. Diabetes is a part of my Everyday!

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DBlog Week: Topic 2….I know I’m late :/

DBlog Week, Topic 2: Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change?

So I’m a little late in starting the blog week that I was so looking forward to…but, as you all know, life is hectic at times! I decided to start today but am going to do a little recap and start off with Topic 2, so here goes!

If I could write a petition concerning Diabetes I would most definitely choose to write one about the differences in diabetes types and the need for education to the general public concerning both.

With the recent increase in Type 2 diabetes over the past few years I have noticed a very serious issue unfolding for society. Growing up as a type 1 diabetic I like to think of myself as a self-proclaimed ‘expert’ of sorts on the matter…and I love to discuss my findings/experiences with all the people I can, be they diabetic or not! Years ago when I told people I was a diabetic they usually had no idea what it was and I had to do a quick education session on the type, cause, and ways to care for it. Over the years that has changed significantly. I no longer have to explain what diabetes is, I now have to explain the differences in Type 1 and Type 2 diabetes. When I mention that I am a diabetic I often hear responses such as…

“Oh, you better not eat that then!”

“So do you take pills or insulin yet?”

“Awww…so is my Grandma, and she had to have her leg amputated. So you better take care of it!”

“Eww…you have to do shots? So sorry it has gotten that bad for you honey! Didn’t you try to fix it before it got to that?’

Or (one of my favorites)…

“Try some cinnamon pills! They worked for my Uncle and now he doesn’t have to use shots anymore!”

Haha 🙂 My, my how things have changed. Now when I mention that I am a diabetic it is immediately assumed that I am a Type 2. Which is understandable, considering Type 2 is primarily the one that is talked about in the media on a wide-scale basis. It is the one that more families can relate to. It is the one that more people hear commercials about. It is the one that more people read articles about. This is not the case for Type 1 diabetes. But, Type 2 is equal to Type 1 diabetes in the fact that it is not educated upon to all the people that ‘know and hear so much about it’….and that is a serious tragedy for not only Type 1s and Type 2s, but also for our world in general!

My petition would be focused on not only discussing treatment options for Type 2 patients in society, but also developing thorough education to all patients with it. I would like to also extend it and include education to the general public which focuses on stressing the differences in Type 1 and Type 2 diabetes and how they affect patients with it, in their own unique ways. I would ask that in all of the media coverage concerning Type 2 diabetes, there be some general information statement stressing that this is NOT the only type of diabetes and how important it is to learn the differences between them.

I have thought of this before many times and came to the conclusion that society tends to like mysteries…so, if a statement could be made that portrays an aire of mystery and presented to the public on a mainstream basis I feel that more people would want to find out the differences in Type 1 and Type 2 diabetes!

My example of a ‘logo’ concerning the petition to educate more people on the differences would be:

“Take the Time to Learn the Types…it just might end up Saving Your Life!”

Could it be a Crappy Complication?..

So for about a year I have had this weird issue with my left hand. It started out only happening when I first woke up…this strange tingling like it was asleep still. But then it progressed into happening every single time I woke up and also, for no reason at all, during the day at random times. I mentioned it to my doctor at my last appointment and he advised that it could be neuropathy because neuropathy occurs all over the body….not just the legs and feet. He said to keep an eye on it and let him know of any changes.

Welllll…it has definitely changed lately, and not in ways I would hope for. It has now progressed to happening all the time throughout my day and with numbness and pain. It feels as though my fingers are swollen and like its hard for me to close my hand into a fist. And the tingling is almost constant at this point.

I feel as though I have been in my shock phase of thinking with this issue for the past month or so. I keep trying to hold onto this idea that it is not a complication and definitely NOT neuropathy because 1) I have never really had a period in my life with T1 that I had constant high blood sugars and 2) neuropathy is only suppose to affect my legs and feet…right?? (No, but for sake of my trying to ‘avoid’ the issue and make excuses, lets say Yes!).

Well, the other night while at work my legs began to hurt and tingle also. This was immediately strange to me because it was not any type of feeling I have ever had in my legs before.

Not muscle cramps.

Not period/musle cramps.

Not growing pains.

Not anything I have even know before in my legs….but in my hand I have known this feeling.

😦 And I was super paniced!

I checked my blood sugar, just to make sure this new body feeling was not related to a low in some way, and was not surprised to find that it was a 326. Yes, super high…and SUPER high for me. But, I knew this was only because I had another severe low before going to work that required glucagon and I also ate when I came to so I figured this was just an overtreatment to that hypoglycemic episode. I did a correction and drank up two bottles of water while I waited for my blood sugar to come back down.

And then I thought, so these feelings in my legs are because of this high? And what if THIS high is the one that brings out the complication that has been bubbling over and waiting patiently to expose its dirty self after all of these years? What if this IS neuropathy? Clearly this awakened me out of my ‘shock’ phase. I thought maybe the tingling and pain of sorts in my legs would subside when my blood sugar came back to normal but no luck. I have actually felt it for two straight days. And sleeping is a total mess. It is SUPER painful!!!

So, yesterday I called the doctor and was able to get an appt today at 11am due to a cancellation. I can’t help but feel this may be God working for me to get ahold of this situation as fast as I possibly can….especially since I have been trying to ignore it for a few months in my hand 😦 .

Okay, okay…so I’m not always an ‘ideal’ diabetic. I do try to be my own doctor of sorts and come up with other possible reasons for symptoms I have sometimes. Usually I resort to foods that I have eaten as being the evil enemy…and most often I am right. But these new symptoms just don’t seem like they are food related. I know darn well they are diabetes related.

For the first time in my whole life with diabetes I feel as though I may not have as much manageablitiy of it as I once liked to think I did. It is definitely being sneaky lately and I feel as though it may have really pulled one over on me…and I don’t like to lose!

Sooooo…hopefully I will get answers today. And I will take on the battle with as much force as I always have! I will prevail and stay healthy, I have to!!

Has anyone else had any of these issues before?

T1D Experience For A Day

Type 1 Diabetes Experience For A Day

The initial purpose of this site was to provide you with information you will need to take the T1D Experience For A Day.  This site will do that but it will also serve to provide high level information about Type 1 Diabetes (T1D) and most importantly how our family deals with this lifelong disease on a daily basis.

Below is the information you need to participate in this experience, as you  take part I challenge you to take to heart and mind how a person with T1D lives day in and day out for the rest of their lives.  Your experience is for a single day….theirs is a lifetime; the intent is not for you to feel sorry for individuals with T1D but to have a much better understanding of what it means to have this disease and how it affects everything they do.  Including but not limited to –…

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All About Me…and Diabetes

Hello, Hello!

Sooooo…about me. I am first and foremost the Mother of two wonderful kids, Madi & Drew! God was gracious enough and blessed me with a girl AND a boy so I couldn’t be happier! 🙂 ….Now for the reason I started this blog, I am a Type 1 Diabetic and BOTH of my children are also Type 1’s…hence the name for my blog, type1x3thatsme!! How strange is that!?

My story goes a little something like this:

I was diagnosed with Type 1 Insulin-Dependent Juvenile Onset Diabetes at the age of 4 (I added all of the ‘old’ names in there because that is how I have known it my whole life!). I can still remember the day I was diagnosed sitting in the doctor’s office and hearing the Dr tell my Mom that I had diabetes. I actually vomited all over the place so maybe that is why I remember it so well! It definitely had to be a life-changing time for my Mom, but she handled it superbly if I must say so myself!

Over the years she and family took an active role in keeping me healthy by educating me constantly on diabetes and myself; for this I am so very grateful today. After all of these years with diabetes I am VERY proud to say that I have absolutely NO complications or any type of pre-complication from it! Hard work DOES pay off 🙂

Don’t get me wrong, I have definitely had some very tough times with diabetes along the way. I tend to be very insulin sensitive and suffer from lows pretty often. I like to keep my blood sugars in the range of 70 to 110 because I feel better at those ranges, but that also causes me to drop rather quickly. I have had several incidents of unconsciousness and even lost my heartbeat a few times because my BG was a 0….but, Thank God, I am still here and going strong! I have also acquired a view of diabetes that I don’t often find in other diabetics so I am once again thankful to my family for that. I don’t view it as a burden or struggle too much, but rather as a gift of sorts. I feel lucky to have diabetes because it has helped me to be completely in-sync with my body and I feel this is a virtue because so many people (diabetic & non-diabetic) are not! I hope to share this view with other diabetics and maybe help them in some way to view their diabetes with a positive outlook rather than a negative one.

I am also the oldest of four girls….and I love my sisters with all of my heart! 🙂 When I was 19 years old, my youngest sister was also diagnosed with Type 1 Diabetes at the age of 9. At the time, I could not imagine what my Mom and family must have been going through knowing they had TWO diabetics now instead of just one…but life would help me to totally understand that feeling soon enough. Having my sister as a fellow diabetic in the house was a relief of sorts to me…it also helped me to fully understand the differences in diabetics; just as two people are totally different from each other, two diabetics also are different.

Both of my pregnancies were very eventful with constant lows and multiple doctor visits, but my babies turned out just fine! I went through the common procedure of checking my baby’s blood sugars if they coughed the wrong way, had smelly breath, or peed too much when they were young. But, for some reason, when they reached above age 5 I felt a bit more at ease that they were ‘safe’ and not going to be diabetic. I did always hold a secret belief though that my son would be the one diagnosed if either of them were ever to ‘get’ it. Those silly assumptions I held probably only added to my stunned phase when my daughter first showed signs of diabetes about 4 years ago.

She woke up in the middle of the night and peed. I thought this was weird because she never woke up to use the bathroom…and I was horrified when she came back from the bathroom, grabbed a bottle of water, and almost drank the whole thing in one shot. I remember the voices in my head battling each other, “Oh my goodness, this is it”….”No, No it’s Not! She’s probably just getting sick or something!!”. But my better thinking took control and I checked her blood sugar first thing in the morning. It was a 197…and I had a mixture of such emotion. I called the doctor after taking her to school and took her in later that day to have her A1c done. Results came back as a 7.5. BUT, I still was not convinced. Which is strange because I KNEW full well that this meant my baby was a diabetic! I took her to the ER and told the doctor that I wanted them to be totally sure. I remember the look he gave me….like he couldn’t understand why I was asking this when I myself had been a diabetic for years and knew that she now was also! I even asked him two times….”So, she really is a diabetic?”. And the answer was what I already knew….she was and is.

I went into the hallway and just cried. I remember thinking “Why am I upset? I know she will be okay, I know she will do great with it. I am thankful that it’s not something really bad, so why am I so upset and sad??”.

That night my daughter did her first injection and she did wonderfully. I could not have been prouder! I remember feeling so scared that the insulin would affect her body negatively…my way of still being in shock and not accepting that she was truly a diabetic now. All at once I felt a whole wave of emotions that I had never experienced concerning diabetes. I was, for the first time, on the opposite side of the spectrum. I was my Mom. I was so many other Moms of newly diagnosed Type 1 diabetics. I was scared. I wanted all information that I could get. I was worried. I was fearful for her future. I was fearful for how I would influence her to think of and care for herself and her diabetes. I was fearful for mistakes. I was fearful for complications, low blood sugars, high blood sugars, doctors visits, carb counting, sick days, and educating others who have no idea about what my baby is dealing with daily. Those were my thoughts of a Mother.

But, I was also excited. I was excited that she would also know exactly what I felt like. She would know what it really meant to be low or high. She would know what food made her feel what way. She would pay attention to ingredients and nutrition facts on the things she was putting into her mouth now & forever. She would constantly be paying attention to her body and know exactly what shape it is in. She would know what being a Type 1 Diabetic is. Those were my thoughts of a Diabetic.

I remember feeling bad for my son after Madi was diagnosed. I didn’t want him to feel ‘left-out’ because Madi & I were checking our blood sugars before we ate. I tried to keep it positive though and told him that he was lucky he didn’t have to poke himself all day long! He would often agree with me because he had a serious fear of needles…all types and sizes. My bad feelings did not last long.

It was April…and Madi had just been diagnosed in November. I remember thinking Drew didn’t look right. That he looked like he didn’t feel well. I remember thinking he looked like a diabetic…like his blood sugar was high. I looked for common signs of him waking up to pee in the middle of the night, drinking more often, or not having energy but none of those things happened. We had went to a movie and I remember thinking that I didn’t want him to drink any soda because I felt he was high…so I got a diet for us all to share. He kept saying that he didn’t feel good…that his stomach felt funny and he barely drank anything. When we got home and were having our night snack before bed, I gave him some fresh carrots and dip because I didn’t want his blood sugar to be any higher. I was having these thoughts and didn’t even know for sure that this was the case! Because of his severe fear of needles, I woke up around 6am to do his blood sugar. I wanted to do it while he was still asleep so he wouldn’t be so scared. The first one I did was above a 300. I immediately assumed it was the machine…my stunned phase. So I got two extra machines from the bathroom, ran a control test on one of them, and did his blood sugar again on both of them. Same results. I sat and looked at that number for what seemed like an eternity before I went into the bathroom and shut the door. I cried and cried and cried. This was a whole new wave of emotion for me. Not only was my daughter diagnosed 6 months earlier, but now my son was too. I felt very much to blame. I felt that I may have somehow caused this. Like I had secret control over his immune system and somehow provoked it to destroy his beta cells. Even though I knew full well that this was not the case, I guess my motherly instincts were to think that way. He was my baby!! I just did not want him to have to take this on.

So….four years later, both of my kids are doing wonderfully with their diabetes. They have grown into recognizing how their body feels with certain blood sugars, foods, activities, etc. and I could not be happier. Thankfully we have not had any serious events with blood sugars and I am so very grateful for that!

Ahhhh…now that I have shared those moments with you, please read my blog often and let me know what your life stories are, what views you have, what experiences you go through, and what ways we can help each other through this wonderful thing called life…with diabetes! 🙂